"Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system
Record details
- ISBN: 1479864625
- ISBN: 9781479864621
- ISBN: 1479863939
- ISBN: 9781479863938
- ISBN: 9781479834327
- ISBN: 1479834327
-
Physical Description:
1 online resource (241 pages)
remote - Publisher: New York : New York University Press, 2020.
Content descriptions
Bibliography, etc. Note: | Includes bibliographical references and index. |
Formatted Contents Note: | Cover -- Title -- Copyright -- Dedication -- Contents -- Preface -- Part I: Families in Crisis. 1. Hope is a thing with feathers -- 2. Studying families of critically ill children --Part II: Unequal illnesses.3. Care-captaining: climbing the rungs of the US healthcare system -- 4. Care-entrusting: staying on the medical sidelines -- 5. Blending and switching care strategies: finding emotional equilibrium -- Part III: Tangled Up in Hope.6. When everything is not enough -- 7. The fragility and tenacity of hope -- 8. Emotionally perilous paths: illness management, emotion management, and the production of healthcare inequalities -- Acknowledgments -- Appendix A: Doing fieldwork in emotionally fraught settings: a brief reflection -- Appendix B: Family and physician demographics -- Notes -- References -- Index -- About the Author. |
Source of Description Note: | Print version record. |